The beginning of everything...
We believe that reaching the real cure can only be achieved through love, dedication, and pursuing the unknown with a true belief and faith.
With all of those together we are pursuinga cure for our daughter who was diagnosed with Nephrotic Syndrome (FSGS) about 3 years ago.
Love drove us down this path to resist allowing ourselves to be altered by this condition and its peculiarities, love has made us change our lives to pursue this cure, inside ourselves we knew it was always a comfort that we would do our best to reach our mission.
Since we understood the Nephrotic Syndrome (FSGS) and how difficult it is to treat it, we started to focus on different approaches. In this way we received a gift when we realized that food is the basic building block of life,so we knew we had to pay attention in the deepest way possible to know what we are giving to our child in terms of a daily diet.
Understanding that relationship,we started to work on the right diet, which was key to improving our daughter’s condition.
The link between several autoimmune reactions such as the inflammatory condition that we see in some cases of Nephrotic Syndrome (FSGS) is related to food intolerance and allergies that were present in our own case and could be present in many other cases that are difficult to treat.
The Gluten-Free, Dairy-Free diet has changed our daughter’s life, reducing her proteinuria levels by almost 90% since she was diagnosed and giving us the ability to see all the changes, and allowing us to reduce the amount of daily drugs that we had administered for the prior 3 years, including the complete elimination of steroids.
Since we discovered the relationship between diet and the symptoms of Nephrotic Syndrome (FSGS) our daughter’s life and ours has completely changed!
We hope the Genie Trial could be the turning point for a sizeable portion of the children that suffer from Nephrotic Syndrome (FSGS), changing their lives in a healthy and happy way, just as it has donefor us.
Thank you very much, and we look forward to having you all with us in Orlando, FL, in Summer 2017.